Family Resources
You play a vital role in shaping better healthcare experiences and driving positive change. DHAN encourages and supports your involvement in care decisions, advocacy efforts, and community initiatives that strengthen access and inclusion. We also recognize that caregivers need care too, which is why we share resources to support your health, well-being, and balance.
Take some time to view the resources listed below. Please note that each row is hyperlinked to either the originating website or the specific resource on the originating website’s page – click the resource you are interested in to be taken to an external site.
| Administration for Community Living (ACL) The Administration for Community Living (ACL) empowers older adults, people with disabilities, caregivers, and those who support them by funding services and investing in research, education, and innovation. |
| The Link Center |
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Recognize, Assist, Include, Support, & Engage (RAISE) Family Caregivers Act Advisory Council |
| Center for Transition to Adult Health Care for Youth with Disabilities The Center for Transition to Adult Health Care for Youth with Disabilities is a national health care transition (HCT) resource center. The goal of the center is to empower youth and young adults with intellectual and developmental disabilities (ID/DD) ages 12-26 to direct their own transition from pediatric to adult care with no reduction in quality of care of gaps in service. |
| Parent/Caregiver Resources |
| Global Down Syndrome Foundation (GLOBAL) The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. |
| Home and Community Services Information System (HCSIS) This is a website that contains multiple links to resources for services throughout Pennsylvania. |
| County Contact Information |
| Provider Directory |
| National Down Syndrome Society NDDSS’ mission is to create a world where individuals with Down syndrome thrive. |
| Health Resources |
| Women’s Health & Down Syndrome |
| National Task Group on Intellectual Disabilities and Dementia Practices The NTG is a national 501 (c)(3) non-profit organization focused on advocating for the needs of aging adults with intellectual and developmental disabilities who are at risk of or who have been affected by Alzheimer’s disease and other forms of dementia. |
| PA Coalition for Oral Health is a diverse group of leaders from across the state from schools of public health, philanthropic organizations, businesses, dental organizations, health insurance firms, advocacy organizations, state agencies, and other champions with the mission to improve oral health for all Pennsylvanians by uniting stakeholders to advance advocacy, policy, education and innovative approaches. |
| Finding Dental Care in Pennsylvania |
| Parent to Parent of Pennsylvania empowers and supports parents throughout by connecting them with families of children & adults with disabilities or health care needs who’ve had similar journeys. |
| Pennsylvania Department of Health The mission of the Pennsylvania Department of Health (DOH) is to promote healthy behaviors, prevent injury and disease, and to assure the safe delivery of quality health care for all people in Pennsylvania. Our goal is to create a healthy Pennsylvania for all. |
| School Health – Special Health Care Needs |
| The Americans with Disabilities Act and Persons with HIV/AIDS |
| Pennsylvania Department of Human Services – Pennsylvania Office of Developmental Programs (ODP) The mission of the Office of Developmental Programs (ODP) is to support Pennsylvanians with intellectual disabilities and autism to achieve greater independence, choice, and opportunity and live Everyday Lives. |
| Independent Monitoring for Quality (IM4Q) |
| Intellectual and Developmental Disability Services |
| The Arc of the United States is the nation’s leading nonprofit advocating for and supporting people with intellectual and developmental disabilities (IDD) and their families. |
| Health Initiatives |
| Telehealth.HHS.gov Wondering how to get started with telehealth? Check out the information below to better understand your options for virtual health care visits. |
| Telehealth Checklist |
| Navigating Your Patient Portal (video) |
| Telehealth Accommodations |
| Telehealth Updates (through 12/2027) |
| Thomas Jefferson University – Jefferson for Adolescents & Beyond (FAB) Center for Complex Care provides a comfortable space for care teams to work with patients and help guide them as they continue to grow. |
| Mini-Module: Caregiver Mental Health |
| United Cerebral Palsy (UCP) of Central Pennsylvania empowers individuals at all stages of life to learn, grow, build relationships, and experience joy by providing services. |